I thought that it was time to up date you all on my progress towards better health.
Since I last posted here, I've been back to Boston almost every week during October and so far in November. About four weeks ago I went to Beth Israel Deaconess for a "right side heart catheterization". It was supposed to be only an over night... I ended up staying seven days!
During the cath the doctors noticed that I was retaining a lot of fluids around my belly, so, they put me on a mega dosage of IV Lasix - 40mg an hour for three days. I ended up loosing almost 7 (yes, seven) liters of fluids and almost 20 pounds. While I was there, they played around with my medications. I'm now up to 4 pills in the morning and 11 pills at night.
Also, while I was at BIDMC I was able to have most of the tests required for transplant evaluation.
Last week on Thursday, I went to Tufts Hospital (also in Boston) to meet with the transplant coordinator, more doctors, dietitians and transplant pharmacy. By the time I was finished, I was so burned out I was mumbling and I think I may even started to drool a little. I was also told that I probably would also need a kidney or two replaced at the same time.
Friday morning, while I drinking my coffee, I get a call from BIDMC telling me that after reviewing the blood tests I had at Tufts they want me back for another cath. Apparently, change meds, and something else fall apart and my heart function is dropping.
Fun thing to be told isn't it? So, back to the hospital for possibly another a week...
I have a couple more tests, a visit to a dentist for dental clearance, get the results from my last colonoscopy sent to Tufts, meet with "infectious diseases", social worker and psyche. It never seems to end.
While I wish that this would all end, I'm not ready to just give up yet.