Marty's Bus

Re: Marty's Bus

PostBy: Freddy On: Wed May 28, 2014 5:56 am

Thank you all for your care.

Well... the bus rolls on... but the road is getting bumpy. Marty is losing weight steadily now, around 3 pounds a week. Some days she'll eat enough to keep a human alive, but most days she doesn't eat enough to keep a parakeet flying. Her knees are hurting a lot & it's difficult for her to walk. Just an hour ago she asked "How come I feel so lousy". I answered "I think it's difficult to see your husband about to turn 60." That provoked a small smile. My birthday is in four weeks. She says she wants to be here for that, and also for her birthday, July 8th. In all honesty... she may or may not see those dates. That's all God stuff for sure, but we humans do have some control. Sometimes a dying person will make a deliberate decision to stop drinking. Marty's not doing that, but, she is starting to lose her need to drink. It comes a point where you simply are not thirsty.

We have had good days. Last week Marty & Eloise went to "Surry Gardens", a greenhouse about 30 miles from here. They brought back a bunch of things in pots & each day are planting some. Marty & I went to "South camp" for a few hours last week too. She made it down the stairs & spent an hour puttering around. We ate lunch on the deck & held hands. We watched birds & listened to the loons. After lunch she found energy & swept the floor. She had her rollator (wheeled walker). She's sweep a bit, sit & rest a bit. I ripped the shower valve out.....some idiot forgot to drain it last Fall & it froze & broke. We stopped on the way home & looked at headstones. We are thinking of doing something different.... we've been looking for a 3 foot roundish boulder. We may or may not... thinking of finding the perfect rock, then having a side cut, polished & engraved. But...we might go with a "normal" head stone. Some of the jet black ones are pretty.

My girls were up to visit. They came Sat for a few hours & Monday for a few more. They shared tears with Marty. As they were leaving I asked, if it was possible, would they want to be here when Marty drew her last breath. It surprised me a bit, but they said yes. So....when the sad time draws near, if possible, I'll let them know & they'll try & make the trip. That day, that moment in time.... it's a full boat of emotions. It's a blessing and a chore rolled into one. It's tears & joy, mixed in an odd way. We hate it, we love it. It's a privilege. Ohh, crap, now I'm rambling. Put the bus in gear.... roll on.
Freddy
 
Stoker Coal Boiler: Axeman Anderson 130 (pea)
Hot Air Coal Stoker Stove: Reading piece o' junk in the barn (rice)
Coal Size/Type: Pea size, Superior, deep mined

Re: Marty's Bus

PostBy: dcrane On: Wed May 28, 2014 6:12 am

your a good man Freddy, hang in their and keep sharing the enjoyment of every lil thing together... my dad found some relief with pregnizone for the joints/muscles (idk if Martys docs suggested it?)
the only issue was because my dad lasted years (not months) after diagnosis with the same cancer stage 4, the pregnizone was great for a year or two (after that it gets a lil' dicey).

Very important to force the nutrition, maybe a juicer, ensure, etc. (try to find something she can tolerate and likes and get her to try some creations and have some fun with it)... then make sure the stuff is their all the time and you drink some too!
dcrane
 
Hand Fed Coal Stove: Crane 404

Re: Marty's Bus

PostBy: Hambden Bob On: Wed May 28, 2014 6:23 am

Damn Good Thing This Bus Wasn't Just Built For Funsies And Jokesies! It's Long haul Time,Freddy! I can't Thank You enough for the Straight Story You've provided. As much as we're allowed,we're in it with You. Respect-It's what's for dinner. Keep The Good Work Up ! :up:
Hambden Bob
 
Hot Air Coal Stoker Stove: Harman 1998 Magnum Stoker
Coal Size/Type: Rice-A-Roni !


Re: Marty's Bus

PostBy: samhill On: Wed May 28, 2014 6:40 am

Thanks for the up dates Freddy, your a strong man having been there with my previous wife I know the emotions. Try to keep an eye on the leg temps & color as it's a good indicator of time. The farthest extremities tend to be shut down a bit to preserve the mass, at least that's what happened in my experience. Just keep on keeping on & cherish the moments, as you said it's a God thing.
samhill
 
Hot Air Coal Stoker Furnace: keystoker 160
Hand Fed Coal Stove: hitzer 75 in garage
Stove/Furnace Make: keystoker/hitzer
Stove/Furnace Model: koker 160/ hitzer 75

Re: Marty's Bus

PostBy: Freddy On: Wed May 28, 2014 6:48 am

dcrane wrote:my dad found some relief with prednizone for the joints/muscles


Marty is on Dexamethasone & just yesterday got orders to double the dose. Everything helps, nothing helps.

Ahh, yes, I've been inventive with nutritious liquids.... good tasting liquids....even experiments that didn't turn out so good... the chocolate ice cream and chocolate pudding milkshake wasn't a hit... and, yes, I'm trying to keep myself full of proteins too. This morning, kebalsa, eggs with cheese, and toast. Onward!
Freddy
 
Stoker Coal Boiler: Axeman Anderson 130 (pea)
Hot Air Coal Stoker Stove: Reading piece o' junk in the barn (rice)
Coal Size/Type: Pea size, Superior, deep mined

Re: Marty's Bus

PostBy: SMITTY On: Wed May 28, 2014 6:53 am

God Bless you Freddy & Marty! You guys are role models for anyone going through the same thing. A great attitude is better than any modern medical wonder. ;)

The bus rolls on!
SMITTY
 
Stoker Coal Boiler: Patriot Coal - custom built by Jim Dorsey
Hand Fed Coal Stove: Harman Mark III (not currently in use)
Coal Size/Type: Rice / Blaschak anthracite
Other Heating: Oil fired Burnham boiler

Re: Marty's Bus

PostBy: gaw On: Wed May 28, 2014 7:41 am

God bless you and your family Freddy. It’s a rough and windy road but you have proven to have a steady hand to roll the bus along.
gaw
 
Stoker Coal Boiler: Keystoker KA-6
Coal Size/Type: Rice from Schuylkill County

Re: Marty's Bus

PostBy: freetown fred On: Wed May 28, 2014 8:32 am

Thanx for the update Freddy. God stuff indeed. No rhyme nor reason ya know. Hugs to Marty my friend. Bottom line--in the end---we've got one another.
freetown fred
 
Hand Fed Coal Stove: HITZER 50-93
Coal Size/Type: BLASCHAK Nut/Stove mix

Re: Marty's Bus

PostBy: michaelanthony On: Wed May 28, 2014 2:49 pm

I have read through this thread many times to remind me of the good in humanity and all I can add is a very heart felt song...
and may we all travel from the loving hands of one to the open arms of another. Peace and love.

https://www.youtube.com/watch?v=wJZ3bcPr-Ds
michaelanthony
 
Hand Fed Coal Stove: Vigilant 2310, gold marc box, vogelzang pot belly coat rack
Coal Size/Type: Pea, and a little nut
Other Heating: Very cold FHA oil furnace

Re: Marty's Bus

PostBy: coaldoc On: Wed May 28, 2014 4:21 pm

So sorry for your & Marty's situation. Tobacco gives a lot of relief through the years but exacts a harsh toll for most in the end. My mother & father both smoked as did many relatives. Most passed in their early 70's. Have as good a time as you both can in the remaining time. I don't post here at all but i do read as much info. as i can. I heat a small cape cod here in N.Syracuse N.Y. with a Harmon Mark 111. A combination of nut,stove coal and a lot of free skid-wood from Harbor Freight. Best of luck to you and your dear wife in your most difficult time. Best regards, coaldoc. (Gary & Pam Proctor.)
coaldoc
 
Hand Fed Coal Stove: Harman Mk. 111
Coal Size/Type: nut & stove mix.
Other Heating: Electric Baseboard

Re: Marty's Bus

PostBy: Flyer5 On: Wed May 28, 2014 7:11 pm

I'm giving my wife and daughter an extra hug today.
Flyer5
 
Stoker Coal Boiler: Leisure Line WL110
Hot Air Coal Stoker Stove: Leisure Line Pioneer

Re: Marty's Bus

PostBy: newbie in ny On: Wed May 28, 2014 8:16 pm

thanks for keeping us posted .
prayers and hugs to Marty, She has something to look forward to, I hope she can make it to her birthday.
newbie in ny
 
Hot Air Coal Stoker Furnace: Keystoker 160
Coal Size/Type: Rice/Anthracite

Re: Marty's Bus

PostBy: Freddy On: Fri May 30, 2014 5:03 pm

newbie in ny wrote:I hope she can make it to her birthday.


Last week I though that would be no problem.... but now.... *sigh* I must report that Marty has gone from "going to die" to "dying".

The last 36 hours has seen a marked change. She might see a few more weeks...maybe not. Of course there's always the chance she'll shake it off & be here for Christmas.
Freddy
 
Stoker Coal Boiler: Axeman Anderson 130 (pea)
Hot Air Coal Stoker Stove: Reading piece o' junk in the barn (rice)
Coal Size/Type: Pea size, Superior, deep mined

Re: Marty's Bus

PostBy: freetown fred On: Fri May 30, 2014 5:06 pm

Be strong my friend. The best we can hope & pray for is a peaceful passing.
freetown fred
 
Hand Fed Coal Stove: HITZER 50-93
Coal Size/Type: BLASCHAK Nut/Stove mix

Re: Marty's Bus

PostBy: NWBuilder On: Fri May 30, 2014 6:05 pm

I am sorry to hear that Freddy. Stay strong my friend. Our prayers are with you.
NWBuilder
 
Stoker Coal Boiler: Ahs 130
Coal Size/Type: Burning Pea anthracite