Moms health has not improved. rediagnosed as mytenia gravis.... HUH? Just doesn't figure...no symptoms of it before... but to have and progress in 2 weeks to where she can't swallow, and further worsening of it to barely able to breathe? She was readmitted to hospital for a few days then transferred to another which has mre neurologist that specialize with the illness. shes been in this hospital now for 2 weeks or so, been on tube ventalation, But due to conditions no feed peg could be put in. Only IV nutrients,barely sustainable. So neurologists did plasmaphareis to filter her blood, to alluviate chemical imbalances so signals from brain to muscles work together,... to no avail. neurologit says maybe a 40% chance for any improvements if any. Moms been heavily sedated for comfort ans such... thursday my two sisters asked if sedation could be lifted for a few minutes to talk to mom about prognosis, and her Advance life Directives. Mom can only nod head yes/no to reply. To continue ventaliton, she will a trach... Moms ADRS say no mechanical means if life as she accustom to can not be possible with them. She answered no Trach. She hasn't had any nursishment for almost 4 weeks until IV one was started 4 days ago, lost over 100 pounds.Sisters asked if she had enough.. she shook head yes, asked if she wanted all support removed other than IV for sedation and any pain meds if needed, she shook her head yes.
So tomorrow we go down to hopefully talk to mom after intubations are removed. She hasn't lost her mind(sharp as a tack!)... her body just can't maintain supporting life. So i'm off work for a few days next week... Hopefully her wishes for peace won't take long.